A cousin of mine has just found out that she has a condition that will change her life. It’s not terminal, but it certainly has far reaching permanent side effects. We’ve never been super close, but we’ve started making efforts to establish a relationship. She sent me the most personal email to date about this condition. Here’s a snippet of my response:
I’m sorry that you may be staring down the barrel of surgery. It’s a bit unnerving. You’re right that your spinal cord and everything surrounding it is a very critical area. One thing infertility has taught me is to not just dole out advice on something you know nothing about. So, of course, I had a date with Dr. Google to look up what’s going on with you. It sounds like the surgery won’t fix the problem, but prevent it from getting worse. There’s a lot of information out there, and I’m sure you are pouring over it to figure out what to do. I hope you find a path that you are comfortable with. The decision can’t be easy, and I sympathize with you.
I can understand the “I’m freakin’ defective,” frustrations. I had seen numerous doctors about my painful periods, inability to get pregnant, and irregular bleeding. None of them ever took me seriously or discovered my “birth defect.” Hell, I had had the thing for 26 years and nobody knew? Insane. This is something they could have detected before I was even born. Alas, it was discovered and I had to deal with it. I got the wrong diagnosis several times. Now that’s enough to drive you nuts. I think I shed enough tears to create a size able pond in our back yard. Coming to terms with what was wrong was no picnic. I don’t think there is any one way to do this. I’m certain I would still be pretty angry and upset if my surgery hadn’t been successful in correcting the issue.
I want you to know that you can talk about this with me any time. Like I said, I have very little in the way of advice, but I listen well. I promise to not pass judgment when it comes to your decisions, but rather I will respect them. It’s your body, your life, and only you know you best. Keep your chin up. You will figure all of this out one day at a time.
Her response was sweet, and the kind where you know that you said the right thing. I can guarantee you that I would have said all of the wrong things prior to this infertility journey. I’m not exactly saying that this is a perk of infertility, but perhaps a small silver lining. Who knew a bum uterus could bring me closer with my family? Certainly not me!